Restaurant Owners Uncorked - By Schedulefly

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

What do you do when your child is diagnosed with a rare, destructive disorder? What if you were told she was one of 30 others in the world identified with the disease and there was no treatment? Sophie’s Neighborhood is a nonprofit organization founded in response to Sophie Feder Rosenberg’s diagnosis of Multicentric Carpotarsal Osteolysis (MCTO) Syndrome. Sophie was misdiagnosed with Juvenile Idiopathic Arthritis for a year until the correct diagnosis was discovered through Whole Exome Sequencing, one of the most extensive genetic tests available.In a matter of a moment, our understanding of Sophie’s condition went from being within a large subset of children with a very treatable disorder  - juvenile arthritis - to suddenly being one in 30 with a crippling, life-altering disease that has no treatment or cure.  Please visit www.sophiesneighborhood.org 

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This episode is sponsored by Sophie's Neighborhood https://www.sophiesneighborhood.org/, a nonprofit dedicated to fundraising for research into the development of an effective treatment or cure for an ultra rare genetic disorder:  Multicentric Carpotarsal Osteolysis (MCTO). What do you do when your child is diagnosed with a rare, destructive disorder? What if you were told she was one of 30 others in the world identified with the disease and there was no treatment? Head to https://www.sophiesneighborhood.org/ to learn more. 

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).

This epsiode is sponsored by Schedulefly (www.schedulefly.com) and Flyp (www.flypmoney.com).