Celiac Project Podcast

Inspired by an article on DailyMail.com entitled; "'I could have died': Coeliac wonan, 27, is rushed to hospital after a restaurant wrongly told her that her chicken and waffles were gluten-free." Mike and Cam look at some spotty and bad gluten free information on the web. We also talk about some tips of how we handle challenging situations when eating out.

We are pleased to be joined by Christin Osborne, from Portland, Oregon. Christin tells a harrowing tale about her unbelievable health struggles before finally getting some answers, including her sons' diagnoses. We also talk about Portland as a gluten free mecca, with many dedicated gluten free bakeries and restaurants.

Inspired by Susan Cohen's great article in Gluten-Free Living featuring Mike's nephew, Sam Frolichstein-Appel, Mike and Cam discuss silent celiac disease in great detail. The article, that also features an interview with Dr. Alessio Fasano sheds many insightful and fascinating details about some of the unique challenges of having and diagnosing asymptomatic celiac.

Dr. Marie Robert, a top celiac doctor, pathologist and researcher is now Beyond Celiac's CSO. She talks with us about the exciting plans that she has in her new position. Dr. Robert also tells us about some of the changes and innovations that she has seen in the celiac world and some exciting new treatments and therapies that are in the pipeline.

It's summer time and that means it's grilling season! Mike and Cam discuss their tips to stay gluten free at cookouts and barbecues. We also share some of our favorite foods to toss on the grill and some that we are looking forward to trying soon.

Though it might not get discussed very often, airborne gluten can cause a reaction. Mike and Cam talk about two farmers whose celiac symptoms would not subside due to inhaling gluten while feeding their livestock. We also look at some surprising sources of airborne gluten and some tips on protecting yourself when gluten is in the air.

It's been a while, so this week we dig through our mailbag. Special thanks his week to Andrea Tucker, of Baltimore Gluten free, who put together and submitted her list to us: "5 Facts a Celiac Doctor Wants you to know about Celiac Disease."  We love our listeners and you are the fuel that keeps us going!

Mike and Cam want to thank Burning Brothers Beer company in Minnesota for providing beer to try on today's podcast. Friend of the show, Laura Eash, brought this gluten free micro brew to us at a recent Expo. We give our thoughts on their pale ales, and some of our opinions on beer in general. Cam also shares a quick update on some of the positive work that his dog, Lacy, has been doing in detecting some surprising sources of hidden gluten in his home.

Mike recently returned from an amazing trip to San Fransisco. He shares navigating his gluten free dining experiences, along with some of his advice for visiting SF and some great travel tips in general. Most importantly, he learned - don't ever call the Cable Cars "Trolleys!"

Author and fellow Celiac, Keith Van Sickle, join Mike and Cam for a second time, this time with Keith's wife, Val. They share with us some of the main differences living gluten free in France versus the U.S. They also share some of their top tips navigating restaurants and social situations, which in France, almost always involve food. You'll feel like you've just visited Provence after this captivating discussion!

We look at 2 seemingly conflicting recent studies.  A recent study conducted by the FDA says that food labeled gluten free almost always adheres to the gluten free standards in the U.S. The other study from The American Journal of Clinical Nutrition showed that most celiacs are consuming a much higher level of gluten than is safe. So what gives? We speculate on some of the reasons why we think this is happening.

Happy Celiac Awareness Month to everyone! Mike and Cam take a look at the current state of celiac awareness in the community and abroad. In addition, they talk about their personal approaches to spreading awareness in their own lives.

Just one year ago, Mike and Cam met fellow celiac advocate, Katie Jones, and heard her harrowing story about living with brittle bone disease and how her dog, Piper, helped her heal from that. Katie updates us on her latest challenges of being diagnosed with MALS and POTS. Find out how she's turned her latest road blocks into ways to inspire and support others!

Mike and Cam dive into Casey the College Celiac's post, 13 "Harmless" Comments that Actually Hurt People with Celiac Disease. What follows is a spirited and entertaining discussion of these sometimes outrageous comments.

This week the guys go deep into an interesting post by Janaki Jitchotvisut entitled " 9 Myths about Celiac Disease..." published on the website "Insider". You will hear which of the "myths" Mike and Cam strongly agree with and which they think need slightly more clarification. Next week in part 2 of this series, they talk about the post, 13 "Harmless" Comments that Actually Hurt People with Celiac Disease, by Casey the College Celiac.

Mike and Cam are excited to be joined again by gluten free travel expert and blogger, Erin Smith. Erin talks about the steps that went into planning her completely gluten free wedding. In addition, Erin, Mike and Cam share their best tips for staying gluten free at these types of events.

Mike and Cam discuss Willem Karel Dicke, a pioneer in understanding that the gluten free diet is the key to treating celiac disease.  In an article titled, "How Famine Under the Nazis Revealed the Cause of Celiac Disease," we see for the first time, how this great doctor used the tragic situation of the famine in the Netherlands to begin to really understand CD. We also compare Dicke's work to that of Dr. Sidney Haas who popularized the "banana diet" to treat celiac disease starting in the 1920s, and how that might ultimately still be holding the U.S. back.

Cam gives an update on the latest developments with his dog Lacy's gluten detection training. We find out what the biggest challenges to date have been and give more tips to listeners who are considering going down this road as well.

Mike and Cam do a tequila blind tasting with 5 different tequilas and Mike tries to stump Cam with tequila trivia. They also talk about some fascinating and surprising facts about this fabulous gluten free spirit! Play along with the boys and tell us which ones are your favorites.

Mike and Cam are excited to welcome Josh Schieffer to the podcast. In 2010 Josh, along with his wife Jayme, founded the Gluten Free Awards, an industry awards program designed to connect those with Celiac Disease to the best products and services. He has published several bestselling books and continues to be a Celiac advocate. We talk to Josh about how he got started with the awards and Buyers Guide and some of the challenges that they have faced to make sure that they bring our community the best information possible.