Celiac Project Podcast

Mike and Cam welcome Dr. Benjamin Lebwohl, gastroenterologist and researcher at the Celiac Disease Center at Columbia University. Dr. Lebwohl is one of the leading experts in the field! Mike and Cam have a far reaching conversation, including the latest in research and treatment of celiac disease, and how to increase awareness both within the medical community as well as the general population. Dr. Lebwohl also talks with us about what future treatment for celiac disease patients might look like, plus the changes and innovations in treatment that he is most looking forward to. 

May is Celiac Awareness Month, and that means it's time for our 8th Annual, "Celiac State of the Union" Podcast! Mike and Cam check the rear view mirror on what's been happening in the celiac and gluten free community and share their top insights and takeaways. One thing is clear to the guys: while it can still be a struggle to live with celiac disease and gluten intolerance, there are many things to feel optimistic about moving forward. We hope everyone has a great Celiac Awareness Month!

Spring News and Notes is bursting with fascinating emails and news! Mike and Cam hear from an author with a diagnosis story that is "all in the family!" We also discuss some tips for cleaning gluten off of surfaces when traveling. Also, a friend of the podcast, who happens to be a scientist, checks in with some very ingenious tests that she has run, and you won't believe the results!

Spring News and Notes are here! Mike and Cam kick off part 1 with an update from Donna, who has six teenagers and is trying to assess which ones have gluten issues and if there is any other celiac disease within her family tree. The guys also discuss the disheartening story of a "gluten free" bakery that was actually filled with gluten. Plus, news of some fun events coming up in Celiac Awareness month and beyond. 

Mike and Cam welcome author, Neva Ryan, to the podcast. Neva has just published her second children's book, Sabina's Celiac Story, about her daughter's celiac journey. It's also a family affair, as we hear about Neva's mother's diagnosis leading to both her and Sabina getting diagnosed. Hear about the wonderful story that Neva wrote to educate Sabina's class about celiac disease and how it eventually transformed into a powerful learning tool for families everywhere. Purchase a copy and learn more about the book at nevaryanbooks.com.    

Grab your favorite gluten free beer and pizza and pull up a bar stool at the Celiac Project Pub! Mike and Cam are excited to welcome back Craig and Lyle to sample the best Chicago gluten free pizza from Chicago Pizza and try 5 incredibly unique beers from Otherwise Brewing in San Francisco. You will feel like you stumbled on the best gluten free bar and pub with a few old friends. Cheers!

Mike and Cam welcome Jessica Lebovits, registered dietician at the Celiac Disease Center at Columbia University, and fellow celiac, to the podcast. Jessica shares her recent research on the impact of celiac disease on dating. There are many eye opening takeaways, including the surprising number of people who intentionally ingest gluten on a date. Jessica also shares some of her reasons for conducting this type of research, insights that she took away from it, and her desire to look even deeper into this subject.

Finding time for self-care is important, and it's especially true when you have a condition like celiac disease or gluten intolerance. Mike and Cam share some of their own self-care tips and talk about some of the stratagies they employ on a daily basis to rejuvenate and recharge! 

Mike and Cam are excited to sit down with Orly Gottesman, founder and owner of Modern Bread and Bagel. Orly shares her personal story about her husband's celiac diagnosis, leading her on an international culinary journey of discovery. Orly’s fascination with finding a way to replicate her gluten filled favorites ultimately led her to creating an amazing line of gluten free flours, gluten free breads, donuts, and bagels that are so amazing they are indistinguishable from the gluten filled versions.  

During a recent get together, Mike has a sinking feeling that he got glutened. Thanks to the help of his NIMA Partners sensor, that fear is confirmed. He shares some of his takeways from this strange situation and the guys discuss other tools that might be helpful after a suspected contamination. Mike also shares some tooth troubles and his detective work to see if having celiac disease contributed to the problem.

Mike and Cam welcome Meghan Donnelly, registered dietician and Senior Manager of Nutrition Services at ScharUS. Meghan talks about the unique approach that Schar takes by having dieticians in key roles at the company around the world. They also discuss some of the innovative ways that Schar makes their products, including growing their own grains as well as the important work that they are doing to help to reduce food insecurity in the gluten free community.

Mike's daughter and returning guest, Jessica, joins her Dad and Cam to talk about high school drama. But not the typical roller coaster, the celiac kind! Jessica shares her insights and how she stays positive despite some of the challenges she's encountered lately, including a teacher who made her happy she has a 504 Plan, tumbling into a misstep at gymnastics practice, and a big decision to make on whether to participate in a class trip.

Part 2 of Winter News and Notes is a jam packed episode filled with great stories and advice! Mike and Cam comment on an incredible email from a newly diagnosed listener with a house full of teenagers and a whole lot of unanswered questions. They also share lists of some of the top gluten free ballparks and some of their own tips on how you can be prepared and stay safe when heading out to a sporting event. You will also find out about the intriguing saga of KC Potato Girl and so much more!

We've got surprising updates plus great listener letters from our Mailbag. In part 1 of Winter News and Notes, Mike and Cam share the intriguing story of a woman who was diagnosed in High School, and still struggled as a graduate student until she was finally able to find excellent medical support in her area. They also give an update on some of the demographic breakdown of celiac disease and much more! Stay tuned for next week's show where the guys turn to thoughts of Spring, talking about safe gluten free options at ballparks and their advice on what to do before heading out to the old ballgame!

Mike and Cam welcome back Dr. Denis Chang and Vanessa Weisbrod from Boston Children's Hospital Celiac Disease Program. They continue their discussion about some of the top takeaways from the past year's International Celiac Disease Symposium (ICDS 2022). In part two they talk about a wide range of topics including oats, facts about dating with celiac, how Dr. Chang became the "TikTok Doc" and so much more!

The International Celiac Disease Symposium (ICDS) happens every 2 years. It's where the top celiac researchers, doctors and advocacy groups convene to discuss the future of celiac disease diagnosis and treatment. This past October, ICDS was in Sorrento, Italy. Mike and Cam are excited to bring Dr. Denis Chang and Vanessa Weisbrod, of The Celiac Disease Program at Boston Children's Hospital, who both attended ICDS, to share some of their top takeaways. There was so much great information that we made it a two part podcast. In part 1, join us to hear about new approaches to diagnosing celiac disease, why the diet and lifestyle is not a "one size fits all" treatment, and so much more!

Do you suffer from skin irritations or flare ups due to celiac disease or gluten intolerance? Mike and Cam reveal some of their own struggles with skin issues while discussing some of the common skin conditions that can present to people with gluten intolerance and celiac disease, including: DH, eczema, alopecia and more. They also share some tips on what you can do to help minimize those itchy and irritating skin outbreaks that are no fun at all.

Ring in the New Year with a fun and festive episode, part 2 of our epic Holiday podcast party! Mike and Cam are excited to welcome back our 3 special guests; Craig Carlino, Lyle Smart and Craig Hardgrove as they continue to work their way through 9 of Groundbreaker Brewing's amazing gluten free beers. All five guys look ahead to 2023, sharing their hopes as well as trying to predict what lies ahead for the gluten free and celiac community. Whether simple and straightforward, like hopes for expanded treatment options, or seemingly insurmountable, like NASA Craig who's just looking for a good gluten free Italian Beef sandwich, it'll have you laughing your way into 2023 :)

To celebrate the Holidays, Mike and Cam put together a special pair of podcasts. For the first time ever, they sit down with three great members of the TCP Inner Circle for an amazing live holiday party podcast! They welcome Craig Carlino, Lyle Smart, and Craig Hardgrove to sample great gluten free beers courtesy of Ground Breaker Brewing. In part 1 the group looks back at some of their 2022 gluten free highlights, including their favorite travel, snacks and more. Stay tuned for part 2 next week as they ring in the New Year by looking ahead and toasting to all the promise that they hope 2023 will bring.

As 2022 winds down, Mike and Cam reflect on some of the events and moments that have them feeling grateful as they look back at some personal highlights of the past year. Find out some of their most surprising gluten free realizations about themselves and each other, and how they're feeling about their gluten free experiences moving forward. They are so fully appreciative of you, the listeners, who have found this podcast to help you on your gluten free journey. Wishing everyone a safe and joyous Holiday Season!