Heart To Heart With Anna

Send us a textAs an author myself, I understand the power of stories to heal and inspire. That's why I'm thrilled to introduce Deanna Altomara, who created "Chrysalis," a book to help people facing open-heart surgery. Born with a congenital heart defect herself, Deanna understands what it means to have had open-heart surgery. Deanna's tale is a testament to how health education and storytelling can intertwine to provide solace and strength to those facing similar battles. Navigating the complex maze of medical procedures and developmental disabilities can be daunting for teens and their families, but this episode illuminates a path of understanding. It was essential for Deanna to create a book for her cousin, who was born with a heart defect and who also deals with developmental disabilities. We delve into the meticulous creation of age-appropriate resources that educate and resonate, merging factual information with fun. Discover how collaboration with an illustrator brought forth a

Send us a textWhen Ellen Boyer's voice joins the conversation, the room lights up with an array of heartfelt stories and powerful messages. Together, we celebrate World Down Syndrome Day by shattering stereotypes and trumpeting the accomplishments of those with Down Syndrome. From the awe-inspiring feat of Chris Nikic, the first athlete with Down Syndrome to conquer an Ironman triathlon, to the everyday triumphs of individuals leading vibrant, fulfilling lives, our dialogue serves as a rallying cry for inclusion and appreciation of every person's inherent worth.The legacy of Brett Boyer shines on, as we discuss the foundation in her memory that advocates for CHD research and support, reminding us how one life can ripple through the hearts of many. Co-editors Megan Tones and Anna Jaworski continue reading from The Heart of a Heart Warrior: Volume 2: Endurance.Motherhood, with all its joys and challenges, takes on profound new dimensions when interwoven with congenital heart defects (CHD). The narrati

Send us a textWhen Ellen Boyer graced our show with her story of love and resilience, it was clear that her daughter Brett, who blessed the world with her presence despite Down syndrome and a congenital heart defect, has sparked a legacy that transcends every stereotype. Through the Brett Boyer Foundation, Ellen's dedication to challenging limitations and advocating for CHD research is a beacon of hope that lights up our latest episode. As we celebrate World Down Syndrome Day, we invite you into our heartwarming discussion and extend an open hand for you to join us in spreading the message for World Down Syndrome Day: Stop the Stereotypes.In the 2nd and 3rd segments of the episode, you'll hear co-editors Megan Tones and Anna Jaworski reading from The Heart of a Heart Warrior Volume 2: Endurance. This week they're reading essays from Chapter 5 in anticipation of the next Baby Hearts Press Book Study, which starts on World Down Syndrome Day (March 21st) from 5-6 PM USA CDT.It's the personal

Send us a textIn this episode of Heart to Heart with Anna we welcome Frank Jaworski back to the program. Frank shares information about anesthesia when patients go to the electrophysiology lab (EP lab), especially when they need to undergo an ablation.Frank is a certified, registered nurse anesthetist (CRNA) and he has been delivering anesthesia for over 23 years. One of his favorite departments to work with is the EP lab. In this episode, Frank shares some tips to help those in the congenital heart defect community reduce their concerns when visiting the EP lab, he offers some helpful questions patients can ask their anesthesia providers, and even shares some tips for how to reduce anxiety during their EP visits.The 2nd and 3rd Segments involve Anna reading from The Heart of a Heart Warrior Volume Two: Endurance.  This is one of the newest books from Baby Hearts Press. This is the second in a 3-book series of essays and works of art by adults with congenital heart defects.In this podcast episode, Anna will r

Send us a textWhen Megan Houpt made the heart-wrenching decision to pursue adoption over pregnancy due to her heart condition, it struck a chord with me as a heart mom. Together, we unfold her narrative in this episode, navigating the complexities of adoption with a CHD. From the intricate dance of home studies to the emotional synergy with a birth mother, we journey through Megan's path to motherhood. The adoption landscape can be arduous, yet it's traversed with hope and culminates in the joyous arrival of Hunter Hart, a name rich with significance. (https://www.facebook.com/HLHSMeaganHoupt)In the second segment of the podcast, we continue reading from The Heart of a Heart Warrior Volume One: Survival. This week, we complete Chapter 3: Being Active with CHD.The courage of those facing congenital heart defects takes center stage as we share stories of triumph and transformation. Hear how heart warriors like and Alicia Lynch and Megan Tones find ways to be active, despite having complex congenital h

Send us a textNavigating life with congenital heart defects (CHD) is a journey of resilience and emotional fortitude. As I converse with my fellow heart mom, Rita Scoggins, we unearth the layers of complexity that come with raising adult children affected by CHD. This episode goes beyond the clinical; it’s an intimate foray into the emotional and logistical preparations for life's greatest certainties, including power-of-attorney arrangements and will preparations, while also considering the implications for our adult children and beloved pets upon our passing.Segment 2 showcases co-editors Megan Tones and Anna Jaworski reading Chapter 2 of The Heart of a Heart Warrior Volume One: SurvivalThe heart of the chapter beats to the rhythm of personal stories that exemplify the myriad ways individuals with CHD find identity and purpose. From Hope’s inspiring transition and embrace of her true self as a transgender woman, to Jason Crutchley's dedication to volunteerism, and Christie Sillman's leap into

Send us a textNavigating the torrent of emotions that come with being a heart mom to an adult child, Rita Scoggins and I, Anna Jaworski, unfold the layers of our unique journey. Our intimate conversation traverses the evolution of care, from the hands-on nurturing of our children's younger years to the complexities of supporting their maturity and independence. We delve into the potent mix of pride and concern, sharing stories that resonate with anyone who understands the pull of a parent's heartstrings as their children, like Rita's daughter Victoria, and Anna’s daughter Hope, carve out lives shaped by both their challenges and triumphs.This episode continues with reading from The Heart of a Heart Warrior Volume One: Survival. In this episode, co-editors Megan Tones and Anna Jaworski, take turns reading essays from the book. In Chapter One we read the narratives of heart warriors who've faced body insecurities and the trials of scoliosis with courage. Laura Ryan's story, in particula

Send us a textThis episode of Heart to Heart with Anna involves news regarding Heart Month 2024. In this episode, you’ll learn about who our guest next week will be, how Congenital Heart Defect Awareness Day came to be and what it has evolved to. You’ll also learn about how Baby Hearts Press, a publishing company devoted to the CHD community, has a special sale for Heart Month and how we’ll be conducting a Book Study of Volume One of The Heart of a Heart Warrior. You’ll also learn about the new writers’ platform we’re working with to create some new books. Scribophile is a place for writers to come together to support one another. Join us in the Heart to Heart group for information for the CHD community.Lastly, I’ll be sharing some behind-the-scenes information about The Heart of a Heart Warrior, our Kickstarter campaign, and why I’ve decided to record the audiobook this month—and give it away freely on Heart to Heart with Anna. This episode features the front matter of the Kickstarter edition of the book. Th

Send us a textEmbark with us as we illuminate the enduring pulse of Hearts Unite the Globe, the non-profit championing an array of deeply impactful podcasts. From the heartfelt dialogues of Heart to Heart with Anna to the comforting echoes of Bereaved but Still Me, we're uniting voices across the congenital heart disease (CHD) community. Our mission extends beyond conversation; it's a call to empower, educate, and enrich the lives entwined with CHD and bereavement. We're unveiling exciting tweaks to our website, orchestrated by the talented Lauren England, that streamline your access to our treasure trove of resources and introduce a town hall-style podcast format that embraces the shared experiences of our listeners.The journey continues as we traverse the landscape of loss and healing, led by the poignant narratives from Michael Liben's Bereaved But Still Me to the hope-infused Everyday Miracles. As executive producer, I wear my pride on my sleeve for the platform we've created that

Send us a textEver wonder about the emotional odyssey of creating a book that captures the essence of human resilience? My co-editor Megan Tones and I, Anna Jaworski, take you on the intimate trek behind "The Heart of a Heart Warrior," from the flicker of an idea to the jubilance of publication. Our conversation unwraps the passion and dedication needed to weave together stories that resonate with the spirit of heart warriors and their families, reflecting on the Kickstarter campaign that turned our hardcover dream into reality. We invite listeners to be part of our ever-growing narrative quilt, emphasizing that the heartbeat of our work is the voices we empower. Turning the page, we navigate the nitty-gritty of book formatting, a task as challenging as it is crucial. Converting our labor of love into an e-book format presented us with a labyrinth of technical hiccups, where attention to detail became our guiding light. We discuss the importance of meticulous proofreading and editing, ensuring the s

Send us a textHave you ever felt the tug of curiosity towards an approach to mental health that strays from the conventional path? Today, I'm thrilled to welcome Valerie Chavez MD and Ryan Hunter to share their insights on functional medicine's transformative role in mental health care, especially for those touched by congenital heart defects. Together, we unpack the personalized care that functional medicine offers, emphasizing the power of lifestyle changes and stress reduction to unleash the body's remarkable healing abilities. Our conversation reveals how addressing the unique underlying causes of health issues leads to profound improvements in emotional and physical well-being.A brush with the serene world of aromatherapy during our discussion spotlights the soothing properties of essential oils, proving invaluable within the high-tension walls of an ICU. We recall how the scent of chamomile provided a tranquil harbor for anxious parents navigating the stormy seas of a child's hospita

Send us a textAs I sit back and reflect on Heart to Heart with Anna in the year 2023, I want you to celebrate with me, Anna Jaworski, as we mark a milestone of connection and growth within the congenital heart defect community. From the early days on Voice America to our move to Blog Talk Radio and beyond, we've weathered sponsorship storms and emerged stronger, bringing hope and vital information to those touched by CHD. Join me for an intimate retrospective on our top episodes of the past year, recognizing stories that have resonated and sparked conversations, powered by the voices that have made this journey unforgettable.Stepping into the future, I'm excited to open the doors to compassionate individuals eager to make a difference. Your unique skills can shine in various volunteer roles, from scripting heartfelt narratives to amplifying our reach on social media. Our collective efforts support Hearts Unite the Globe, ensuring that no one walks their CHD path alone. I have a particular fondness f

Send us a textImagine living in a family where sudden deaths were a tragic norm. That's the reality heart mom Jackie Renford faced before the fateful identification of Long Q-T Syndrome, a genetic heart condition, in her family. Her misdiagnosis and the subsequent loss of her son and daughter have inspired her to become an advocate for early detection and treatment of this life-threatening condition. Journey with us as she shares her family's heart-wrenching story and opens up about the ongoing battle with Long Q-T Syndrome.Jackie's experiences with Long QT Syndrome open up a world that is often misunderstood. How do you navigate through life when you and multiple family members are affected by a genetic heart condition? Jackie gives us a first-hand account of the symptoms, diagnosis, and treatment of Long Q-T Syndrome, as well as the emotional toll it takes. She emphasizes the importance of regular medical check-ups, cautious medication use, and a proper diagnosis. Find out how her family is r

Send us a textHow does a young child learn to fight, to survive, and even thrive when they're born battling a congenital heart defect? Join us as we journey through the inspiring life stories of Emily Falcon and Mabel, two extraordinary women who refused to let their heart conditions define them. Emily, born with the rare ALCAPA--Anomalous Origin of the Left Coronary Artery arising from the Pulmonary Artery, takes us through her harrowing experiences with two open-heart surgeries, and how these experiences have shaped her into the woman she is today. Have you ever wondered how the body adapts itself to survive a chronic illness? Emily provides a firsthand account of her body's fight for survival, and the challenges she faced, leading to her penning down a memoir about living with chronic illness. Listen to her describe the difficulties she faced in expressing her emotions, the support she found in her friendship with Mabel, and their collective efforts to raise awareness of those with congenital hea

Send us a textHave you ever considered how your lifestyle choices could be affecting your health? Ever wondered about the benefits of essential oils or how to improve your gut health? Then you're in the right place. In a riveting discourse with renowned Valerie Chavez, MD, and Ryan Hunter, we delve into the heart of Functional Medicine. Together, we unravel the mysteries behind this unique approach that goes beyond surface symptoms to identify the root causes of illness.Harness the power of essential oils and understand the importance of sourcing from reputable sources in our exploration of this therapeutic world. Ryan Hunter unveils the secrets of these potent substances, their historical use, benefits in stress relief, sleep induction, inflammation reduction, and more. Imagine enhancing your mental and emotional well-being with the simple application or inhalation of these oils. Intriguing, isn't it? As we wrap up, we shed light on the often overlooked sensitivities and allergies many have towards

Send us a textHave you ever wondered about the strength that it takes to parent a heart warrior child? What does the journey of raising a child with a congenital heart defect look like? Meet Alison and Brian Blankenship, parents to two children, one of whom is a heart warrior named Ian. Ian was born with a critical congenital heart defect, and his parents are here to share their intimate story of resilience.This compelling episode takes you through the emotional journey of the Blankenships, right from the moment they first received Ian's diagnosis. They bravely face the challenges of countless medical procedures, and share the different milestones they have celebrated, each one a testament to Ian's resilience. There's also a deep dive into the strong bonds they've forged within the CHD community, a source of support that has proven invaluable over the years. The couple touch on the unique grief and isolation that comes with having a child with a heart defect and stress the importance of se

Send us a textMeet Cody Watkins, a beacon of resilience and health, who brushed against mortality when he discovered a congenital heart problem lurking beneath his ripped physique. Unaware of the ticking time bomb in his chest for 30 years, Cody offers a riveting recount of his journey within the world of bodybuilding, his shocking discovery, and how he's courageously navigating life post-heart surgery. Cody's story takes an unexpected turn when during a regular training session, his valve ruptures. The wake-up call led him to the emergency room where the reality of his condition hit home. Cody discusses the symptoms leading up to his heart failure, his diagnosis, and the urgent call to action around heart health awareness. Brace yourselves as Cody talks about his astonishing recovery - from reversing heart failure to shrinking his heart back to a normal size within a year. We discuss the adjustments to his diet, the role of supplements, and his determination to participate in a bodybuilding show, a

Send us a textAs a heart mom myself, I know firsthand the unique challenges that come with raising a child with both a congenital heart defect and autism. That's why I invited Melanie Letzer and Kelly Blumenthal to join me for a candid conversation about their experiences navigating this complex journey. Together, we discuss the importance of trusting your instincts, seeking early intervention, and finding the right support system for your family.In this heartfelt episode, we explore the challenges of getting a diagnosis and the critical role of having an IEP in place to support our children. We share our experiences with ABA therapy during the pandemic and how it has helped us better understand our children's behavior. We also discuss the importance of connecting with other parents for emotional and practical support, and how tenacity and a willingness to try different approaches are essential when it comes to finding the right program for your child.Our journey as parents has shown us the power of

Send us a textWhat if you could find a space to share your story, ask questions, and connect with others living with congenital heart conditions? Join me as I chat with Leigh Kamping-Carder, founder and writer of "The Heart Dialogues," a free newsletter that does just that. We discuss Leigh's own experience of living with tricuspid atresia, a single-ventricle defect, and her journey navigating two different approaches to cardiology - one in Canada and one in the US.In our conversation, we explore the medical trauma that comes with surviving open-heart procedures and the importance of addressing and normalizing this often unspoken aspect of living with a heart condition. Leigh shares her unique perspective on the differences in care she experienced as an adult with a cardiac condition in Canada and the United States, and the potential benefits of a more laid-back approach to care. Discover the choices patients can make when considering their health care and the impact of different philosophies o

Send us a textWhat was it like to give birth to a baby with hypoplastic left heart syndrome (HLHS) in the 1990s? How would it feel like to watch that miracle child grow up to become a mother herself? What is it like to then see your daughter's daughter for the first time? Answers to those questions and many more will be answered in this Mother's Day Special Heart to Heart with Anna episode. Meg Didier is a 30-year-old hHLHS survivor and a mother. After we finished recording her episode, “HLHS Survivor and Mother” earlier this year, I said it would be so wonderful to have her back on the show with her own mother for May 2023, especially in celebration of Mothers’ Day and she agreed.Patty Hansen and I “met” online over two decades ago, when the Internet was young. We met via a listserv and shared inspiring stories about our heart warriors, questions we had, and shared concerns. We prayed for one another, gave helpful advice, and encouraged one another. When I decided to put together an anthology of st