Ms Trust

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Sleep problems are more common in people with MS than the general population. Around half of people with MS say they experience disturbed sleep.  In this episode we  talk about some common problems and some potential ways to improve your sleep. We chat to prof Michael Banissy who has written several books on the topic and we also caught up with tiktok star Jo, also known as the Yorkshire wife, to talk to her about her issues with sleep.Show NotesSleep and MS - information from The MS Trust: https://mstrust.org.uk/information-support/wellbeing-ms/sleep Focus on sleep problems - information from the MS Trust: https://mstrust.org.uk/news/expert/focus-sleep-problems-ms Sleep and MS podcast - podcast from MS Trust: https://mstrust.org.uk/information-support/podcasts/sleep-problems-msThe Yorkshire Wife On tikTok - https://www.tiktok.com/@theyorkshirewife 

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Diagnosing MS can be a lengthy procedure, and getting on a treatment path can take even longer. So what happens when you treat potential MS really early? In this episode, we talk to Professor Klaus Schmierer about the AttackMS trial. The trial, the first of its kind, aims to use a highly-effective drug to treat people within 14 days of presenting with possible MS symptoms. Show Notes AttackMS trial: - classic.clinicaltrials.gov/ct2/show/NCT05418010 How is MS Diagnosed - information from The MS Trust: mstrust.org.uk/information-support/ms-symptoms-diagnosis/how-is-ms-diagnosed CIS - information from The MS Trust: mstrust.org.uk/a-z/clinically-isolated-syndrome-cisTaking part in clinical trials - information from The MS Trust: mstrust.org.uk/information-support/ms-research/which-trials-and-whereThe MS Guide video interview with other AttackMS participants  https://www.youtube.com/watch?v=0j-t2qUhhO0 AttackMS:

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Have you been told to consider using a stick or wheelchair, but don't think you're ready for it yet? Maybe you're noticing changes to your walking ability and you’re wondering what you can do about it? In this episode, we talk to neuro physio Laura about helpful mobility aids, and how to change your perspective on using them. We also check in with Hayley (my_sassability), who was diagnosed with MS aged just 13. She now uses mobility aids and is passionately advocating the importance of being seen not just using her wheelchair, but being proud to use her wheelchair.  Show notesHayley's Blog on MS Trust website: mstrust.org.uk/news/stories/my-sassability-if-we-are-not-seen-we-are-not-heard A-Z of MS Walking difficulties:  mstrust.org.uk/a-z/walking-difficulties Mobility problems and aids in MS (Part 1) podcast from MS Trust: mstrust.org.uk/information-support/podcasts/mobility-problems-and-a

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39So you want to lead a healthier lifestyle with MS? But, you're feeling overwhelmed and you're not sure where to start? We've been there. Can simple changes in sleep, exercise, and diet REALLY influence MS management?Special guest Charlie Peel, author of ‘Disease-modifying lifestyle in multiple sclerosis: evidence, challenges, and the importance of engaged, informed patients,’ gives us her take on the small steps that can make a massive difference to you. Learn practical strategies for positive lifestyle changes today!Plus listen to our colleague Stephen’s MS journey. You’ll hear about how the exercise challenge ‘Miles for MS’ changed his life, why he’s now organising it and how you can get involved! Oh, and the best part? This challenge is truly accessible to everyone in the MS community!Listen now to discover the power of setting goals, staying active and living well with MS.Show notesMiles fo

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Ready to take steps to improve your brain health? Neurologist Agne Straukiene (also host of BeeWellWithMS podcast) has a multi-pronged, scientific approach to boost your mental health, symptom management, fatigue resilience, cognition and sleep quality. We talk tailored exercise, learning how diet helps and hinders your MS, and the lowdown on supplements. Plus, how sleep, meditation, and stretching your mind with a new hobby or skill play their part too.Show NotesEpisode notes:-Brain health and MS - Information from the MS Trust: mstrust.org.uk/a-z/brain-health-Exercise and MS  - Information from the MS Trust: mstrust.org.uk/information-support/exercise-ms- Diet and MS - Information from the MS Trust: mstrust.org.uk/information-support/diet-ms- Lifestyle Choices  - Information from the MS Trust: mstrust.org.uk/information-support/wellbeing-ms/lifestyle-choices- Sleep and MS - Information from the MS Trust mst

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39During MS Awareness week we aired a live podcast were we talked all things MS, emotions and feelings. Our recent survey of over 2,000 people living with MS, revealed that 56% feel that MS negatively impacts their mental health.  We were super excited to be joined by two excellent guests, who answered questions from the viewers: - Roshan das Nair• Senior Research Scientist, SINTEF, Norway• Professor of Clinical Psychology & Neuropsychology, University of Nottingham, UK- Dr Cora Sargeant, Educational Psychologist and presenter of Sciencing the s**t out of MS.Show notes-MS and your feelings, especially for people who are new to MS shop.mstrust.org.uk/publications/ms-and-your-feelings/- This hub on our website connects you to all kinds of options to support your emotional wellbeing.  mstrust.org.uk/information-support/wellbeing-ms - Mood matters film: youtube.com/watch?v=euZvutKFimU- MS Trust Mental health po

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Every week around 130 people are diagnosed with MS. Finding information you can trust is important, particularly when you're newly diagnosed, as learning about MS can help you take control and feel more secure in a time of uncertainty. In this episode, we chat with Corinne from our helpline about what questions they hear from people who have recently been diagnosed and the types of responses they give to them.We also talk to Team GB athlete Lina Nielsen, who was diagnosed as a teenager about her MS diagnosis and her approaches to handling the condition.Episode notes- Newly diagnosed?: mstrust.org.uk/information-support/newly-diagnosed - MS Trust what is MS?: mstrust.org.uk/about-ms/what-ms - MS trust how is MS diagnosed?: mstrust.org.uk/about-ms/what-ms/how-ms-diagnosed - MS Trust A-Z of MS : mstrust.org.uk/a-z - MS Trust contact us: mstrust.org.uk/what-we-do/contact-us - Lina Nielson's Instagram: i

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39In this episode, we are doing an MS awareness week special. This year the campaign looked at how MS affects everybody differently and encouraged people to share their experiences using the hashtag #MSMakesMe. Helena and Erika, from our fundraising team, catch up on what has happened throughout the week, as well as some exciting things that are happening in the next few months for the MS Trust.  Want to join the conversation? Listen now to find out how you can get involved and make your voice heard.Episode notes- MS Awareness week: mstrust.org.uk/MSAW- Live stream - MS: Your emotions and feelings: mstrust.org.uk/get-involved/ms-awareness-week#register- MS and mindfulness with Justin Standfield - YouTube - How does MS Make you feel?:  mstrust.org.uk/news/how-does-ms-make-you-feel- Miles for MS: mstrust.org.uk/event/miles-ms- Host a Thirtea party: mstrust.org.uk/party- Volenteer with the MS Trust - mstrust.org.u

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39It’s estimated that 130,000 people in the UK have multiple sclerosis. Every week around 130 more people are diagnosed. Are you worried that your symptoms might be MS? Have you looked MS up on the internet and read about symptoms that sound like the ones you’re experiencing? Or perhaps someone in your family may have MS and you are concerned that you may also get it.In this podcast, we chat about what you should do if you are worried that you might have MS, as well as what your next steps could be. Although don’t turn off if you already have a diagnosis, as we’re also sharing an interesting personal story from Dr Daniel Matterson, better known as @the.ms.doctor on Instagram. He chats to us about his diagnosis and shares some tips about what you can do if you are worried you have MS. Episode notes- Worried you have MS?: mstrust.org.uk//information-support/ms-symptoms-diagnosis/worried-you-have-ms- MS Trust what

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39How can I explain MS fatigue to my family? What treatments are available for MS fatigue? What can I do to help my fatigue? We answer these questions and many more submitted by you in a special MS fatigue livestream with Claire from our information team. Listen now to our sister podcast: 'Multiple Sclerosis breaking it down live!'Want to get involved in the next livestream? Join our MS streaming community mstrust.org.uk/get-involved/fundraising-and-events/ms-trust-exclusives/msplayEpisode notes:- MS Trust information on fatigue:  mstrust.org.uk/a-z/fatigue- Book - Living with fatigue: shop.mstrust.org.uk/publications/living-with-fatigue/- Video on how Fatigue makes me feel: https://www.youtube.com/watch?v=2DnjDH2v8XY&t=3s -Describing fatigue to others: mstrust.org.uk/news/expert/describing-fatigue-others-Can cacao really help with MS fatigue? mstrust.org.uk/news/stories/can-cacao-really-help-ms-f

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Frustrated how multiple sclerosis is typecast in the media? We often hear that TV shows, newspapers and social media do not show the kind of MS most of you experience. So we asked three journalists with MS for their standpoint. Listen to our chat with Rachel Horne, Daf Wyn and Richard Sprenger - as we shine the spotlight on MS in the media, and why we think a more realistic approach is long overdue.  Episode notes: - MS Trust News and stories: mstrust.org.uk/news-stories - Share your story with the MS Trust: mstrust.org.uk/news-and-stories/send-us-your-story - MS Trust Blog, What made Daf Wyn call his doctor?: mstrust.org.uk/news/stories/what-made-daf-wyn-call-his-doctor - MS Trust Blog, A sceptic's guide to wellness: mstrust.org.uk/news/stories/sceptics-guide-wellness - Guardian series; A sceptic's guide to wellness: theguardian.com/lifeandstyle/series/a-sceptic-s-guide-to-wellness - Rachel Horne P

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39In this episode, we talk about altered sensations. So what are altered sensations then? They are a bunch of sensory symptoms that can occur in MS, such as burning, tingling, pins and needles, crawling, numbness, prickling and the list goes on!  We talk to Dr Amanda Howarth, a pain specialist about what exactly they are and why they happen. We also share some of the MS community's life hacks around living with altered sensations.Episode notes: - MS Trust A-Z page on altered sensations: mstrust.org.uk/altered-sensations - MS Trust A-Z page on pain: mstrust.org.uk/pain - MS Trust Blog - What's with the strange tingling, crawling, burning and prickling feelings?: mstrust.org.uk/news/expert/whats-strange-tingling-crawling-burning-and-prickling-feelings- MS Trust A-Z on Complementary and alternative medicine: mstrust.org.uk/complementary-and-alternative-medicine- MS Trust A-Z on Cannabis: mstrust.org.uk/c

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39New year, new podcast! In this episode, we cover new research developments, education and what’s new at the MS Trust.  We kick off the year by talking a little about what’s happening in the world of MS, the MS Trust and more.We chat to Rachel Horne who is a journalist with MS. She breaks down her MS journey and how she launched ‘the Rachel Horne Prize for Women's Research in MS’.  Next, our guest Helen from our MS Trust education team discusses the training we do with MS nurses and what this means for people living with MSEpisode notes:- The MS Trust podcast: mstrust.org.uk/information-support/support-services/podcasts-ms-trust- More about MS Specialist Nurses: mstrust.org.uk/a-z/ms-specialist-nurses- Rachel Horne Prize for Women's Research in MS: Rachelhorneprize.com- MS Trust Disease modifying drugs books; shop.mstrust.org.uk/publications/?type=treatments Next episodeThe next episode will be on a

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39For our last podcast of the year, we thought we'd get back to basics and concentrate on one of the most important things the MS Trust does, and that is answering your questions about MS.  We've compiled a list of the most popular topics which people have contacted us about this year. We chat with our Head of Information and Engagement, Claire who works on the MS Trust helpline, to talk us through some of these topics.Episode notes:- What we do; mstrust.org.uk/what-we-do/about-ms-trust- MS helpline and information; mstrust.org.uk/what-we-do/about-us/ms-helpline-and-information- MS Trust Facebook group facebook.com/groups/multiplesclerosistrust Whether you have recently been diagnosed, want to know more about a symptom you are experiencing, or need information on the different MS drugs and treatments, our MS Trust helpline team are here to answer your questions. 

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39In this short episode, Helena talks to Tristan about an exciting fundraising opportunity to double your gifts to the MS Trust at no additional cost. Help your money go further and double the impact for people with MS.Episode notes:Double your donation at mstrust.org.uk/big-give - From 29 November to 6 December 2022, give through The Big Give to double the value of your donation at no additional cost to you!

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39This time on Multiple sclerosis breaking it down, we’ll be talking about thinking problems in MS. Problems with thinking and memory affect around half of all people with MS. Cognition is the medical term for thinking, and problems with thought and memory are known as cognitive problems. Issues include memory, attention span, planning, decision-making, understanding or concentration.To explain cognition issues in MS, and some strategies that may help you, we chatted with Professor Roshan das Nair. Helena and Debs also share their experiences with cognition difficulties and what they do to manage them.Episode notes:- Thinking problems in MS - Information from the MS Trust: mstrust.org.uk/information-support/health-wellbeing/thinking-and-memory-problems-Staying Smart - tool from the MS Trust: mstrust.org.uk/information-support/staying-smart-Brain health - article from the MS Trust: mstrust.org.uk/a-z/brain-healt

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39This time on the MS Trust podcast we’ll be talking about eye problems in MS. Multiple sclerosis can affect your vision in several ways. Problems with your sight, such as optic neuritis, can be an early symptom of MS, but can also arise if you've had MS for some time.To try and explain the ins and outs of visual problems we chat to Dr Benson Chen a neuro-ophthalmologist, about some common eye issues in MS and ask him some questions the MS community sent us.  We also chat to Deb about her own experiences with eye issues that eventually led to her MS diagnoses.Episode notes:- Visual problems in MS - Information from the MS Trust: mstrust.org.uk/a-z/visual-problems-Optic neuritis - article from the MS Trust: mstrust.org.uk/a-z/optic-neuritis-Double vision (diplopia) - article from the MS Trust: mstrust.org.uk/a-z/double-vision-diplopia-Nystagmus - article from the MS Trust: mstrust.org.uk/a-z/nystagmusNext e

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39We are back with part two of our Sex and MS podcast. At the MS Trust we have produced content about Sex and MS for many years, and if there is one thing that we have learnt, it is that sex is a tricky subject to talk about. That’s why, we’ve once again invited subject experts, Denise Middleton and Lesley Catterall to answer some of the of your questions around sex and MS for men. We also chat with Dom from the MS guide, about his own experiences on the subject of sex and MS. Episode notes:- The MS Guide- Dom's YouTube channel www.youtube.com/channel/UCIpq0cm2wIfKJ6H8xs2AxGA - Sexual problems for men with MS A-Z of MS - Information from the MS Trust:  -mstrust.org.uk/a-z/sexual-problems-men-ms- Relationships and family life - Information from the MS Trust: mstrust.org.uk/life-ms/relationships-and-family-life- Ask the expert: Sex and MS - Information from the MS Trust: mstrust.org.uk/news/views-and-comment

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39At the MS Trust, we know that talking about sex and sexual health isn’t easy. Many people find it an awkward or embarrassing topic to discuss, whether that’s with partners or health professionals. That’s why, we’ve invited subject experts, MS nurses,  Denise Middleton and Lesley Catterall to answer some of the questions you may want to know the answer to but didn’t want to ask. Before that we hear from Roxy, aka Multiple Sclerosis Fashionista about their experiences of sex as someone living with MS and hear some tips she has for others. Episode notes:- Sexual problems for women with MS A-Z of MS - Information from the MS Trust: mstrust.org.uk/a-z/sexual-problems-women-ms- Relationships and family life - Information from the MS Trust: mstrust.org.uk/life-ms/relationships-and-family-life- Ask the expert: Sex and MS - Information from the MS Trust: mstrust.org.uk/news/views-and-comments/ask-expert-sex-and-ms-Red

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Disease modifying drugs (DMDs) are a group of treatments for people with multiple sclerosis. Most DMDs are for people with relapsing remitting MS (RRMS), but there are some that are licenced for use by people with progressive MS. For people with RRMS, disease modifying drugs reduce the number of relapses you might experience as well as reducing the severity of any relapses you do have.There are a wide range of drugs approved for use by the NHS in the UK. Each drug offers a different combination of benefits and possible risks.In this podcast we are going to be chatting to neurologist Kate who is going to explain the ins and outs of DMDs and how you can go about choosing one. Then we will be talking to Sam, who shares her personal journey of choosing DMDs.Episode notes:- Disease modifying drugs - MS Trust A-Z: mstrust.org.uk/about-ms/ms-treatments/disease-modifying-drugs-dmds- Frequently asked questions about D