Ms Trust

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Many people with MS can experience issues with their walking and mobility. Difficulties can include unsteadiness, tripping and stumbling, and being less confident when walking. In this episode we chat with blogger, Emily, who was diagnosed with relapsing remitting MS in 2010. Emily shares her experience of using walking aids and discusses how using a wheelchair helped change her life.Episode notes:- This episode was produced by our volunteer Will - Read Emily's multiple sclerosis blog at thewibblydinosaur.com- MS Trust page on Walking difficulties: mstrust.org.uk/a-z/walking-difficulties

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Guest presenter and volunteer, Will, is back to delve into another area of our MS archives. In this episode he turns his focus to balance and dizziness in multiple sclerosis, and shares ways to help manage these symptoms. Featuring input from Neuro and Vestibular Physiotherapist, David Herdman.Wills references:- Source Video: youtube.com/watch?v=OLOgSuceaSs- Just One Thing (with Michael Mosley) - Stand on One Leg: bbc.co.uk/sounds/play/m000w3lh- MS Trust page on balance: mstrust.org.uk/a-z/balance

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39There are over 40,000 people living with advanced MS in the UK. These people can feel invisible to the healthcare system, with little interaction with health professionals and limited access to disease modifying drugs. In this episode we talk to Paru and Rob from the MS Trust about why we are raising funds to place more health professionals in the NHS to try to help. We also talk to MS Champion Nicki Hare about what life with advanced multiple sclerosis is like and what MS champions do to help.Show notes:- Help advance MS care and drastically improve the quality of life for some of the 40,000 people living with advanced multiple sclerosis. Visit mstrust.org.uk/advancing-ms-care

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Guest presenter and MS Trust volunteer, Will, continues raiding our MS archives. This time he's talking about pain and multiple sclerosis. Featuring input from consultant nurse in pain management, Sue Barnes.Will's references:- Source Video: youtube.com/watch?v=jg3Cwpk_0dI- Patient-Led Engagement for Access (to medical cannabis): pleacommunity.org.uk/- Project Twenty21 from Pr David Nutt's Drug Science Charity: drugscience.org.uk/project-twenty21/- Prevalence of chronic pain in the UK: bmjopen.bmj.com/content/6/6/e010364- Surgical treatment of trigeminal neuralgia: pubmed.ncbi.nlm.nih.gov/20953805/- MS Trust page on pain: mstrust.org.uk/pain

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39In this Carers Week special we hear from Martin who was diagnosed with MS around 40 years ago and his wife Lizzy, who offers support through unpaid care. We also chat with Roma from Carers in Hertfordshire about what help and support is available for carers across the UK.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Guest presenter and MS Trust volunteer, Will, was diagnosed with multiple sclerosis in 2015. Here he raids our archive to talk about disease modifying drugs (DMDs). Featuring input from MS nurse advisor, Nikki Embrey, Will covers key questions including how to tell whether a treatment is working, how long to stick with a DMD that is causing intolerable side effects, and whether you can have the flu vaccine when you're on a DMD. All views are Will's own.Will's references:- Source video: youtube.com/watch?v=AjVWf4tFjns- Brain Health: Time Matters in Multiple Sclerosis report: msbrainhealth.org/report- MS Trust page on disease modifying drugs (DMDs): mstrust.org.uk/dmd

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Did MS or the pandemic make you rethink your career path? In this episode we talk to Will and Diva, two performers who used their MS diagnosis as a catalyst to change direction in their working lives.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39During the pandemic many people with MS were told to shield. But what was it like for the keyworkers with MS? In this episode of our podcast we chat to Mel, about her experiences of working as a nurse during lockdown. And speaking of nurses, we also chat to MS Trust CEO David Martin, about what happened to the MS Nurses and the MS Trust Nurse program during 2020.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39MS is often diagnosed in your 20's when a lot of people are just starting out their working career. During 2020 many people found themselves on furlough, or being made redundant. In this episode we speak to Amy, who started not one but 2 new jobs during 2020. Amy also runs an online support group for young people with MS and we chat about how that was a great help during the year.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39During 2020 we had to learn to live with the new norm where everything moved to online. But how does that work when you are expecting a baby? In this episode we chat to Jenna and Annie, two ladies with MS who both found out they were expecting during lockdown.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39During lockdown a lot of us felt drained from doing nothing at all. Many people with MS struggle with fatigue during the best of times, but lockdown made things several times worse. In this episode we meet Ant Chapman, a musician and educator who worked all the way through lockdown remotely. We talk about his MS journey and how getting creative and starting to stream music making sessions on Twitch helped him get through lockdown. Ant even made this podcast theme tune as a part of a live stream for the MS Trust.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39This past year has been tough on all of us. But imagine being diagnosed with a lifelong condition such as multiple sclerosis in the middle of it all. In this podcast the MS Trust chat to two young women, to find out how they coped with their MS diagnosis in the middle of a pandemic.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39In this last episode of "It's all in your head", we chat about loneliness and anxiety with Claire from the MS Trust Information Team. We also talk to Catherine Seymour from the Mental Health Foundation about the impact of lockdown on our mental health, and how we can ease ourselves back to normality when lockdown ends.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39In this fifth episode of "It's all in your head" we chat to Sara Coffey, a dramatherapist, who explains more about dramatherapy as an approach to dealing with mental health problems. Sara has worked with people with MS in the past, so shares some brilliant insights into how this kind of therapy can help, and dispels some common myths around it. We also talk to Jessie Ace. Jessie is a podcaster, illustrator, author, and all round inspiring lady.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39The fourth episode of our 'It's all in your head' series focuses on MS nurses and how they can help people with MS with their mental health. We speak to MS Nurse Sally Fox about what an MS nurse does from day to day, why she thinks mental health is important and how you could talk to your MS nurse about it. She also shares some great tips like breathing exercises that you could try yourself. We also talk about our 'MS Trust in..

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39The third episode of the series focuses on anxiety, a feeling many people with MS will be familiar with. First of all we hear from Mike, a person with MS who talks about his experience of anxiety since being diagnosed with MS, as well as during the coronavirus outbreak. We then catch up with Jo Johnson, a neuropsychologist who guides us through a few exercises you can follow along with. These exercises are based on a psychological therapy called acceptance and commitment therapy (ACT). They encourage you to be more aware of your feelings and approach anxiety in a slightly different way.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39The second episode of new series focusses on the newly diagnosed and the impact an MS diagnosis can have on your mental health. Learning that you have a lifelong condition is a huge thing to try and deal with, so how do you get your head around that? In the podcast, we hear from Emily and Will about what has helped them come to terms with their diagnosis and Claire from our Information Team talks about some of the coping strategies which can help.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39The first episode in our new podcast series all about MS and mental health. We chat to Gemma from the MS Trust’s Information Team about why mental health problems are more common in MS, neuropsychologist Dr Anita Rose shares her top tips for taking care of your mental wellbeing, and Chris and Carla, who both live with MS, share their experiences.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39We're living in uncertain times and we know that lots of you, understandably, have questions about the coronavirus and MS. So for this podcast, we've pulled together some of the questions that have cropped up the most and asked Claire, who works in our Information Team, to answer them. We also chat to Carla King, who lives with MS, about her experience of dealing with lockdown. Please note: all information and advice in this podcast is correct at the time of publication.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39In the podcast, we speak to Dr Anita Rose about how you can take care of our mental health during the coronavirus crisis. We also chat to Will Berard, who lives with MS, about how he is coping in the COVID-19 lockdown. Please note: all information and advice in this podcast is correct at the time of publication. For the latest coronavirus information please visit www.gov.uk/coronavirus or www.nhs.uk/coronavirus