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'Major Step Forward' As Funding Confirmed For EB Patients
- Autor: Vários
- Narrador: Vários
- Editora: Podcast
- Duração: 0:10:11
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What is described as a 'major step forward' has occurred in efforts to help people living in Ireland with a horrific skin condition. Ring-fenced funding has been secured to help the 300 people living in this country with the condition, known as epidermolysis bullosa (EB). National charity Debra said it will be a ‘major step forward’ for those battling the cruel and incurable genetic condition. Alan Morrissey spoke with Liz O'Donoghue, who is only too aware of epidermolysis bullosa. Element: towfiqu barbhuiya via Canva