Empowered Patient Podcast

Raising Awareness About Congenital Rubella Syndrome with Janet Lee CRS Patient Advocate

Informações:

Sinopse

Janet Lee is a patient advocate for those suffering from Congenital Rubella Syndrome (CRS) and is on a mission to educate healthcare professionals, patients, and caregivers about the delayed manifestations of this disease.  This is also a story about a mother who was not vaccinated for Rubella and who gave birth to Janet who was born with extreme hearing loss and suffers from other complications from CRS.  Thanks to her mother's intensive training and love, Janet learned to read lips was able to communicate with me on Skype to allow us to record this podcast. Search on Facebook for CRS (Congenital Rubella Syndrome) for an invitation to join Janet's private group. Read the transcript here